An Open Letter To The Bio Med Community . . .

An Open Letter To The Bio Med Community….

Posted by: 

13413838_1742801249332318_1240436523_nI want you to know I see you.

You didn’t expect this, you didn’t expect that your child would be different.

You felt betrayed and alone when your pediatrician read out their autism diagnosis, and you hurt.

You still hurt till today.

You would have been a soccer mom, a cheerleaders mom, a mom on the PTA doing cake sales, car pools and helping organizing the prom.

Your son would have been a football star and your daughter? Homecoming queen.

Then college, university, a wedding, grandchildren and cosy Thanksgiving meals where you all sit around like the Waltons.

No loudly stimming child figured in this picture.

Instead you are faced with a child who’s autistic, or as you like to say, ‘has autism’, even better…’my child has autism but autism doesn’t have him!’.

You blindly walk out of the a Paeds office blinking through your tears, and you get angry!

You need someone to blame, many parents go through this and they settle….they accept.

Not you.

You go online and discover the rumor that vaccines cause autism, that the government have covered up this up, it’s a conspiracy!

You now have something to focus on, and it feels good.

You join a group on Facebook, an anti vax group full of mothers ranting that their child was lost, just after their MMR…that there are ways to recover the child…and you begin to believe it.

You ask your paediatrician and if he’s not a DAN doctor or a bio med quack he will tell you the truth, that it’s been proven there’s no link to vaccines and the MMR.

That there’s no cure for autism.

He’s lying of course you decide, he’s paid by big Pharma and needs to cover his ass.

You start your child on a strict gluten free casein free diet, and you look into chelation.

You look into parasite cleansing to, and that’s where things go rapidly downhill.

Is the line drawn here where you see parents posting pictures of their children’s bowel lining enough to drive you back?

How about the five year old who died in 2005 from Hypoglycemia after having all his calcium removed from his body with chelation? You saw something about that but you kept scrolling.

It was put there by big Pharma you decide….

This isn’t a long letter.

It’s a letter to remind you of someone, someone very important.

Your child.

‘But I do nothing but think of my child!’ You think indignantly. ‘I’ve got him on 40 hours ABA a week! He’s on the GF/CF diet! Chelation is around the corner, Wakefields a God! There’s a big Pharma cover up! It’s a conspiracy, give me back my son/daughter!’

You rage at Autism as if it’s separate from your child.

Your child’s gone nowhere.

We are here to tell you your child has gone nowhere, they are however very confused.

They know that you think there’s something very wrong with them, they know because even though they have had no tests they are allergic to Gluten so can’t have pizza with their friends, McDonald’s?

Satan’s food you hiss.

They know because they have to sit in front of a therapist repeating the same task over and over again, until it’s right in the the therapists eyes.

Until they can swallow the pain and LOOK into their eyes without flinching.

They feel it when you look at them, a mixture of intense love and determination, a slight bit of repugnance….

Understand this bio med mom.

Your child is not ill, they are not damaged and they are certainly not an epidemic to be feared and molded to your idea of perfect.

They are autistic and belong to a race of masters, of artists, musicians and inventors, scientists.

‘But my child can’t even talk!’ You rage, ‘I am their voice!’.

With the right tools put in place they can communicate, with signing, PECS or communication apps they can find their voice, help them do that.

They have their own community, we are here for them.

You can still be a soccer mom, your child can still be on a team though it may be a specially inclusive team tailored to suit them. All the things you wanted, the car pools, the cake making and PTA can all happen though it may take place at a different school then you imagined.

They can still graduate, they can still go to the prom, there are proms now for special needs teens.

They may get married, they may not, who knows? They may want to, they may not.

They may need intense care, that does not make them wrong, at fault or less in any way.

When you have a baby, make the decision to have a baby always remember you are having a person. A person has ideas, ideals and abilities of their own, these may not fit in with yours.

They may be a different sexuality yo what you bargained for, they may have a disability or mental illness, and that is part and parcel of having a child.

You should have in you the ability to love and accept unconditionally, if not then ask yourself who the one with the ‘fault’ is, you or them?

They are so young and they still have so much time, let them grow, cherish them and value them.

I promise you that if your 40 hours of ABA aka compliance training is dropped and replaced with OT, Speech and language therapy and play therapy your child will be happier.

They do not need to comply, they need to learn at their own pace, and you will not be letting them down by just letting them BE.

Look, really look at your child, that’s them.

There’s no other child hidden there, no child waiting to ‘break free’, no child that’s ‘MSSNG’, only one that will learn to hide their true self in order to please YOU.

Please, from an autistic, accept them.

It’s not about you.

It never was.



A Letter To my 13 Year Old Self

A Letter To My 13 Year Old Self

Posted by: 

13444485_1742804909331952_2136429771_nDear 13 year old me,

You’ve been bullied to the point of a suicide attempt, three straight days of having your front door kicked and being called a female dog. Your crime? To go out it with the best looking boy on the estate.


Your suicide attempt doesn’t work as I was there, watching and begging you to wake up, to tell your unsupportive mother to get you to the hospital.

Even though as soon as psych help is suggested your mother hustles you out of there you adapt ( there’s reasons for her not wanting you to speak to anyone, and you will know why later on).

You rebel.

You decide that if they bullied you as yourself, quiet and distant then you would change. A full masking of emotions that lasts for years to come ensues.

You become the ‘naughtiest girl in school’ just like the Enid Blyton books you used to read.

Gone is Daryl Rivers…..

You set off fire alarms and attack teachers, throwing tables and being asked to leave classes the minute you enter.

You leave school never to return.

You think little of yourself, you’ve modeled yourself on the ‘popular’ girls and quickly realized that although you can change your clothes to the classic uniform trend they all seem to follow IE: Kickers, Wallabies and Chipie trousers, you still don’t make the grade.

On the outside to all intents and purposes your there in the crowd, hanging back slightly …..the last one to giggle at a shared joke.

You find out that you can be extremely popular with boys…. they laugh with you and say they love you. They use you and tell you your beautiful, and with each giggle then abandonment you lose a little of your sparkle.

My sweet realize this, you are an undiagnosed autistic.

The colors and vibrancy you see in a swaying tree branch cannot be quelled, the crying fits where you run off to the nearest green area to calm yourself in the peace of the trees are meltdowns.

You my darling are not poison, you are not wrong, at fault or broken.

You like the heavy throb of the bass in hardcore hip hop, the auditory stimulation comforts you and the priopreceptive feedback from leaning on a large speaker feeling the vibration soothes you.

You will do great things, you will have six children and at age 37 you will be diagnosed with Aspergers. The distance you felt, still feel is explained.

The feeling of moving through an unscripted film role now makes sense.

If I could hug you just once, to tell you it will all make sense.

To persuade you that the cause and effect of punching through glass windows will at that moment help the anger you feel, it will also scar your knuckles for years to come.

Remember when you were younger you felt you were a fairy, dropped in the wrong world?

That you felt your wings were lost, and you would search, always search for your fairy folk? Collecting snails and painting their shells, the flowers and quiet corners of gardens were your haven.

You were right.

And when your older, you find your fairy folk.

They are called Autistics.


Not So Cool Family Medicine Endangerment

Not So Cool Family Medicine Endangerment

Posted by: 




Due to information given to me today by a concerned US citizen I launched an independent investigation into a clinic in Tennessee called Cool Springs Family Medicine..

This clinic claim to be holistic healers, and have made the detrimental decision to state that they will no longer supply parents with vaccinations as, according to their website and blog, they cause autism.

This is blatant misinformation and fear mongering, they are risking an outbreak of highly infectious disease causing dreadful harm to people with compromised immune systems and with heart and lung problems.

Measles, Mumps, Rubella and Polio being just a few, the effects of which can be seen in the accompanying pictures.






It seemed completely unbelievable to me that an actual working medical practice could have a blog on their website talking about going up against big Pharmaceutical companies along with photos of smiling welcoming doctors, mothers posing with adorable babies that are supposedly non-vaccinated and a proclamation that their hyperbaric chambers may show improvement with neuro-developmental disorders, autism being listed as one of them.


There’s no scientific evidence that an oxygen tank can help, recover or cure an autistic brain.

It is, however an extremely lucrative business with one treatment costing $100 but, if you buy a block of ten they will cut you a deal that the price for each treatment is dropped to $89.

In a badly written blog entry on their website they irresponsibly claim that autism is an epidemic and ‘Don’t quote the single study by the CDC that states the MMR has no link to Autism.’


They then state ‘One of the authors of that paper Dr.Thompson said that the data was falsified and the study manipulated. So with this information and the lack of studies that prove the safety of combined vaccines, I can do no harm, so I’m out’.

Correct me if I’m wrong but that proclamation incites that Dr Thompson was a party to a falsified paper, which is untrue, but if it were would that not mean this writer and worryingly medical professional was believing a liar and thus putting the vulnerable public at risk?

That, I’m sure, sounds reassuring and totally plausible to an anti vaxer and so I decided to ring up as an anti vax mother of an autistic child and got a lot more then I bargained for, I was told after inquiring about their hyperbaric chambers that they have a good recovery rate with autism.

When I asked if they could cure it I was told yes.


I was also told that they do not have vaccines on the premises and that if a parent wished to vaccinate they would direct them elsewhere.

This is one of the easiest articles I’ve ever written, the danger this practice is posing makes it so.

They repeatedly make false claims, reckless claims and go against everything a responsible medical facility is meant to be.

I spoke to Christina Sturges, a nurse from the US who works in Long Term Care and cares for the most vulnerable in society, the elderly and those with compromised immune systems.

“Given that every authority of the matter recommends the same standard vaccination schedule, I’d say this clinic is directly going against the standard of care.

This is unacceptable in medicine. We trust physicians and other clinicians to provide us with the most accurate and up-to-date information as proven by medical researchers and generally recognized within medical community.

It is certainly not ok to spread lies and misinformation about one of the most important medical breakthroughs ever. Dr. Jonas Salk is rolling in his grave. These people are a disgrace and do not represent those of us who work our asses off to ensure people are getting proper care and treatment.”




Brit parents with autistic children paying thousands for 'scam dolphin therapy'

Brit parents with autistic children paying thousands for 'scam dolphin therapy' EXCLUSIVE: A Sunday People investigation foun...